“You shall not pay”: Informed Consent as producer of solidarity in reproductive medicine
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Keywords

Egg donation
informed consent
altruism
science and technology
Argentina

How to Cite

Ariza, L. (2016). “You shall not pay”: Informed Consent as producer of solidarity in reproductive medicine. Ciencia, Docencia Y Tecnología, 27(52). Retrieved from https://ojstesteo.uner.edu.ar/index.php/cdyt/article/view/131

Abstract

Using a pragmatist and Science and Technology Studies approach this article explores the use of the informed consent form (ICF) as a medical-administrative device used in egg donation in Argentina. The signing an ICF, it is argued, seeks to provide the felicitous conditions for the assertions contained in it, as well as for other statements regarding the selfless character of donations, to performate ova donors and recipients as altruistic persons. Such configuration is part of the production of the fertility clinic as a moral space rather than as an environment entrenched in the logic of the market. The article advances, thus, a non-anthropocentric view of altruism and solidarity that aims to explain them as sociotechnical results rather than as persons’ innate qualities.

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References

ÁLVAREZ, H. (2007). Consentimiento presunto y respuesta requerida como alternativas a la escasez de donantes: un análisis ético, en: Revista Chilena de Cirugía, 59(3): 244-249.

ARRIBÉRE, R.; COCO, R.; GALLO, A.; MACKEY, T.; NISEBE, M.; RIVERA, S.; WILLNER, R. (2007). Consentimiento-autorización para la realización de prácticas de FIV, en: Reproducción 22(1).

ASOCIACIÓN MÉDICA MUNDIAL. (1964). Declaración de Helsinki. Helsinki: AMM.

ASRM (2006) Repetitive Oocyte Donation. Fertility & Sterility, 86, S216-S217.

ASRM (2015) Síndrome de hiperestimulación ovárica (SHO). ASRM. Disponible en: <https://www.asrm.org/uploadedFiles/ASRM_Content/Resources/Patient_Resources/Fact_Sheets_and_Info_Booklets_en_Espanol/sindrome%20de%20hiperstimulacion%20ovarica%20(SHO)%204-23-12%20FINAL.pdf > [19 de octubre de 2015].

AUSTIN, J. (1962). How to do Things with Words. The William James lectures delivered at Harvard University in 1955 [Editado por James O. Urmson.]. Londres: Clarendon Press.

BARÓN, L.; KORECK, A.; LANCUBA, S. (2006). Evaluación de las motivaciones de un grupo de donantes pagas en un programa de ovo - donación anónima, en: Reproducción, 21(2): 49-54.

BARR, M. (2006). ‘I’m not Really Read up on Genetics’: Biobanks and the Social Context of Informed Consent, en: Biosocieties, 1(2): 251–262.

BEAUCHAMP, T.L.; CHILDRESS, J.F. (2009). Principles of Biomedical Ethics (6th ed.). Nueva York; Oxford: Oxford University Press.

BREKKE, O.A.; SIRNES, T. (2006). Population Biobanks: The Ethical Gravity of Informed Consent, en: Biosocieties, 1(4): 385–398.

BUTLER, J. (2010). Performative Agency, en: Journal of Cultural Economy, 3(2): 147-161.

CALLON, M. (2007). What Does it Mean to Say that Economics is Performative?. (pp. 311-357). En MACKENZIE, D. et al. (Eds.) Do Economists Make Markets? On the Performativity of Economics, eds. Princeton, N.J.; Woodstock: Princeton University Press.

CANCER RESEARCH UK. (2012). Does test tube baby treatment increase cancer risk? Disponible en: < http://cancerhelp.cancerresearchuk.org/about-cancer/cancer-questions/does-test-tube-baby-treatment-increase-cancer-risk > [27 de agosto de 2012].

CAÑETE, R.; GUILHEM, D.; BRITO, K. (2012). Consentimiento informado: algunas consideraciones actuales, en: Acta Bioethica, 18(1): 121-127.

CIOMS. (2002). International Ethical Guidelines for Biomedical Research Involving Human Subjects. Disponible en: < http://www.cioms.ch/publications/layout_guide2002.pdf > [2 de agosto de 2015].

The Nuremberg Code. (1949). En: MITSCHERLICH, A.; MIELKE, F. Doctors of Infamy: the Story of the Nazi Medical Crimes. (pp. xxiii-xxv). New York: Schuman.

CORRIGAN, O. (2003). Empty Ethics: the Problem with Informed Consent, en: Sociology of Health & Illness, 25(3): 768–792.

COSTA, M.V. (2008). El manejo de la información médica: el consentimiento informado y la confidencialidad. (pp. 165-196). En: LUNA, F.; SALLES, A. (Eds.). Bioética: nuevas reflexiones sobre debates clásicos. Buenos Aires: Fondo de Cultura Económica.

DELEUZE, G.; GUATTARI, F. (2002). A Thousand Plateaus: Capitalism & Schizophrenia. Londres: Continuum.

DICKENSON, D. (2007). Property in the Body: Feminist Perspectives. Cambridge: Cambridge University Press.

DYER, C. (2000). Consent Needed for Organ Retention, BMA says, en: British Medical Journal, 321: 1098.

GALLARDO LOZANO, E.; BORGES DE SOUZA, M.D.C; BRONFENMAJER, S.; URBINA, M.T.; ÁLVAREZ DÍAZ, J.A. (2009). Introducción. (pp. 3-4). En REDLARA (Ed.). Consentimientos. Redlara. Disponible en: < http://www.redlara.com/images/arq/consentimentos%20informados%20esp.pdf > [21 de julio de 2013].

GILL, M.B. (2004). Presumed Consent, Autonomy and Organ Donation. en: Journal of Medicine and Philosophy, 29(1): 37-59.

HADDOW, G. (2005). The Phenomenology of Death, Embodiment and Organ Transplantation, en: Sociology of Health & Illness, 27(1): 92-113.

HENWOOD, F.; WYATT, S.; HART, A.; SMITH, J. (2003). ‘Ignorance Is Bliss Sometimes’: Constraints on the Emergence of the ‘Informed Patient’ in the Changing Landscapes of Health Information, en: Sociology of Health & Illness, 25(6): 589–607.

HOEYER, K. (2008). The Ethics of Research Biobanking: A Critical Review of the Literature, en: Biotechnology and Genetic Engineering Reviews, 25(1): 429-452.

ISLAS-SAUCILLO, M.; MUÑOZ CUEVAS, H. (2000). El consentimiento informado. Aspectos bioéticos, en: Revista Médica del Hospital General de México, 63(4): 267 - 273.

JALLINOJA, P. (2001). Genetic Screening in Maternity Care: Preventive Aims and Voluntary Choices, en: Sociology of Health & Illness, 23(3): 286-307.

JACOB, M.-A. (2006). Another Look at the Presumed-versus-Informed Consent Dichotomy in Postmortem Organ Procurement, en: Bioethics, 20(6): 293–300.

JACOB, M.-A. (2011). Knowledge Games, Truthfulness and Organ Transplants Regulation, en: Biosocieties, 6(2): 243–261.

LATOUR, B. (2005). Reassembling the Social. An Introduction to Actor-Network-Theory, Clarendon Lectures in Management Studies. Oxford: Oxford University Press.

LEDERER, S.E. (2008). Walter Reed and the Yellow Fever Experiments. (pp. 9-17). En EMANUEL, E.J.; GRADY, C.; CROUCH, R.A.; LIE, R.K.; MILLER, F.G.; WENDLER, D. (Eds.). The Oxford Textbook of Clinical Research Ethics. Oxford: Oxford University Press.

MAZUR, D.J. (2008). Consent and Informed Consent: Their Ongoing Evolutions in Clinical Care and Research on Humans, en: Sociology Compass, 2(1): 253–267.

MENEGON, V. (2004). Consentindo ambigüidades: uma análise documental dos termos de consentimento informado, utilizados em clínicas de reprodução humana assistida, en: Cadernos de Saúde Pública, 20(3): 845-854.

MOL, A. (2002). The Body Multiple. Ontology in Medical Practice. Durham; Londres: Duke University Press.

NAHMAN, M. (2011). Reverse Traffic: Intersecting Inequalities in Human Egg Donation, en: Reproductive Biomedicine Online, 23(5): 626-633.

NACIONES UNIDAS. (1948). Declaración Universal de los Derechos Humanos.

NBAC. (2001). Ethical and Policy Issues in Research Involving Human Participants. Disponible en: < https://bioethicsarchive.georgetown.edu/nbac/human/overvol1.pdf > [2 de agosto de 2015].

NICE (2004) Fertility Assessment and Treatment for People with Fertility Problems. Disponible en: < http://www.nice.org.uk/nicemedia/pdf/CG011fullguideline.pdf > [4 de noviembre de 2012].

NUFFIELD COUNCIL ON BIOETHICS. (2007). Public Health: Ethical Issues. Disponible en: < http://nuffieldbioethics.org/wp-content/uploads/2014/07/Public-health-ethical-issues.pdf > [2 de agosto de 2015].

NUFFIELD COUNCIL ON BIOETHICS. (2013). Donor Conception: Ethical Aspects of Information Sharing. Disponible en: < http://nuffieldbioethics.org/wp-content/uploads/2014/06/Donor_conception_report_2013.pdf > [19 de abril de 2015].

PHILLIPS, J. (2006). Agencement/ Assemblage, en: Theory, Culture & Society, 23(2-3): 108-109.

PRÄG, P., MILLS, M. C. (2015). Assisted Reproductive Technology in Europe. Usage and Regulation in the Context of Cross-Border Reproductive Care, en: Families and Societies, 43(1-23).

SAMER. (2012). Código de Ética en Reproducción Asistida, en: Reproducción, 27(2): 65-70.

SCHEPER-HUGHES, N. (2001a). Bodies for Sale – Whole or in Parts, en: Body & Society, 7(2-3): 1-8.

SCHEPER-HUGHES, N. (2001b). Commodity Fetishism in Organs Trafficking, en: Body & Society, 7(2-3): 31-62.

SHAW, R. (2011). Thanking and Reciprocating under the New Zealand Organ Donation System, en: Health, 16(3): 298–313.

SHEACH LEITH, V.M. (2007). Consent and Nothing but Consent? The Organ Retention Scandal, en: Sociology of Health & Illness, 29(7): 1023-1042.

STEINBROOK, R. (2002). Protecting Research Subjects - The Crisis at Johns Hopkins, en: The New England Journal of Medicine, 346(9): 716-720.

STEINER, P. (2010). Gift-Giving or Market? Economists and the Performation of Organ Commerce, en: Journal of Cultural Economy, 3(2): 243-259.

TITMUSS, R.M.; OAKLEY, A.; ASHTON, J. (1997). The Gift Relationship: from Human Blood to Social Policy. Londres: LSE Books.

WALDBY, C.; MITCHELL, R. (2006). Tissue Economies: Blood, Organs, and Cell Lines in Late Capitalism. Durham; Londres: Duke University Press.

ZEGERS-HOCHSCHILD, F.; PACHECO, I. (2001). Formularios de educación y consentimiento en procedimientos de reproducción asistida. Red Latinoamericana de Reproducción Asistida. Disponible en: < http://www.redlara.com/images/arq/Consentimientos%20informados.PDF > [21 de julio de 2013].

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